Not Just Tofu

MY LUPUS STORY

P1040966 After a long year in 2010, I started to visit specialist after specialist in search of an answer to my health issues. Not only to myself, but my friends and family felt that I was sick every other week.  Not only did I get sick often but I would stay sick for long periods of time.  As an active person, this cycle became very frustrating.

It was not until after physical therapy that I realized 2 reoccurring symptoms: fatigue and extreme soreness.  I thought I had fibromyalgia and brought it to the attention of my primary physician who gave me a general check-up.  That check up led me to a rheumatalogist, a doctor who specializes in joints,bones and muscles. After his check up, he ordered blood test and his first general diagnosis which was Lupus.

I didn’t even know what Lupus was.  I had heard it on a soap opera once and that character died so you can only imagine where my mind went. After much Google and Mayo Clinic, Lupus is an autoimmune disease that takes on several forms and can affect any part of the body, but is most commonly attacks the skin, joints, heart, lungs, blood, kidneys and brain. Six weeks later, it was confirmed that I have Lupus and will have it for the rest of my life. I am grateful that I my case is not severe; Youtube is full of testimonies from sufferers who barely make it out of bed due to the pain and exhaustion. If you have:

  • Dry eye
  • Unexplained fatigue
  • Insomnia
  • Joint soreness
  • Forgetfulness
  • Depression

You could have an auto-immune disease.  The whole point of this story is not to gloss over changes in your body.  If you notice a change, record the changes, talk to a professional and get the help you need.

It has been almost 3 years since I got diagnosed with Lupus.  Since being diagnosed, I have returned to school to study culinary arts.  I am an active church member, working as the Christian Education Secretary, planning activity after activity.  I get tired, but I haven’t had a flare (a session where your are down and out for a while) in over 6 months.  All this is to say, life goes on.

For more information on Lupus, visit www.Lupus.org     

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